Aaron and Stella Alterra had been married for more than sixty years when Aaron began to notice puzzling lapses in his wife's memory. Innocuous at first, they became more severe and more alarming. After a series of appointments and tests, the Alterras were informed that Stella was one of the more than 4.5 million Americans with Alzheimer's disease. Combining medical research on the disease and often-painful anecdotes of memory loss, deteriorating motor functions, personality shifts, support-group and daycare experiences, and drug trials, Alterra chronicles his transformation from husband to caregiver after his wife's diagnosis. More than a chronology of one family's experience of Alzheimer's disease, The Caregiver is an intelligent, beautifully reflective testimony to how family members turned caregivers become the ultimate advocates for their loved ones in the face of a disease with no cure.
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"The Caregiver is one of the few examples of the lived experience of Alzheimer's disease from the perspective of a loving, reflective, and articulate husband. Aaron Alterra paints a beautiful and honest picture of how Alzheimer's disease changed one family's world, a literate world full of life, music, art, and words. His story will touch physicians, nurses, social workers, physical therapists, psychologists, and healers of all sorts who struggle to assist families in their journey with this disease."--Patricia G. Archbold, Building Academic Geriatric Nursing Capacity Scholars Program, American Academy of Nursing
Aaron Alterra is a pseudonym for E. S. Goldman, an award-winning fiction writer who publishes frequently in the Atlantic; he has published a novel and two volumes of short stories and lives on Cape Cod. Arthur Kleinman is Esther and Sidney Rabb Professor of Anthropology, Professor of Medical Anthropology, Professor of Psychiatry, and Curator of Medical Anthropology in the Peabody Museum of Archaeology and Ethnology at Harvard University. His books include Patients and Healers in the Context of Culture and The Illness Narratives.
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